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Oliwier Frydryszak potrzebuje pomocy !

Poznajcie naszego synka Oliwierka urodzonego 27.01.2007 r. Przez 3,5 roku był okazem zdrowia, naszą największą radością i szczęściem. W sierpniu 2010 r. stał się nagle apatyczny, zaczął utykać na nóżkę, wybudzał się z płaczem w nocy. Lekarze nie wiedzieli, co się dzieje z naszym synkiem, Oliwierek z dnia na dzień gasł w oczach. W końcu w październiku 2010 r. Oliwierek w ciężkim stanie trafił na oddział onkologii bydgoskiego szpitala im. Dr. Antoniego Jurasza, gdzie przyszło mu stoczyć trudną i niebezpieczną walkę o życie. Nasz przeciwnik to NEUROBLASTOMA – straszny i podstępny nowotwór złośliwy. Oliwierek przeszedł intensywną chemioterapię, operację usunięcia guza, autoprzeszczep, radioterapię i leczenie podtrzymujące. Mimo to choroba odpuściła tylko na 2 lata.

W lutym tego roku stwierdzono wznowę, walka zaczęła się od początku. Oliwierek dostaje chemię, ale komórki nowotworowe, które przetrwały w jego ciele są silne i oporne na leczenie. Mimo to nie tracimy nadziei, nasz synek już raz pokazał jaki jest silny, wierzymy, że i tym razem zwycięży!

Mamy nadzieję, że nowotwór się wycofa i pojawi się szansa na terapię antyGD2, niedostępną w Polsce, koszt
to średnio 150 tys. euro. Kwota ogromna, ale dobroć ludzi jest jeszcze większa, sami nigdy nie pozostawaliśmy obojętni na apele chorych dzieci, teraz to my musimy prosić  Państwa o pomoc.

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Blog Oliwierka



 

 

Dzień Dziecka

 Z okazji Dnia Dziecka, życzymy Wam kochane dzieciaki

samego zdrowia i szczęścia !

Kiedy dziecko śpiewa –
śpiewa cały świat.
Cały świat piosenką jest,
śpiewa kot i śpiewa pies,
ptak na niebie, wiatr na drzewie,
świerszcz na łące…
Nawet kiedy pada deszcz,
to ten deszczyk śpiewa też,
że po deszczu, że po deszczu
będzie słońce.

Kiedy dziecko tańczy – tańczy cały świat.
Z rudym kundlem czarny kot,
drzewa z niebem, z ziemią płot,
ptak z obłokiem, wiatr z motylem,
świerszcz na łące…
Cały świat ma tyle lat,
ile dzieci mają lat,
te dzieciaki, co do tańca 
wzięły słońce.

Kiedy dziecko płacze –
płacze cały świat. 
Kot ma oczy pełne łez,
na podwórku płacze pies,
wiatr w kominie, mysz pod miotłą,
świerszcz na łące.
O, jak słono od tych łez,
nawet cukier słony jest,
o, jak ciemno, o jak zimno –
gdzie jest słońce? 

Dajcie dzieciom słońce, żeby łez nie było,
Dajcie dzieciom słońce, dajcie dzieciom miłość.
Dajcie dzieciom słońce, całe słońce z nieba,
Żeby mogły tańczyć, mogły śpiewać.

Wanda Chotomska


 

Szansa na życie...

Nikola ma dopiero 6 lat a już dużą część swojego życia spędziła
w szpitalu, prawie 4 lata walczy o życie z nowotworem złośliwym Neuroblastoma IV stopnia z przerzutami do szpiku i kości!!!



Po 8 miesiącach spokoju, radości z odzyskanego zdrowia,
kiedy Nikola miała iść do przedszkola, nastąpiła wznowa!
Rak zaatakował szpik kostny i kości.

Ciężkie cykle chemioterapii nie przyniosły rezultatu, niewielka poprawa pojawiła się po kolejnych dwóch, jednak lekarze nie dawali zbytnich szans, więc rodzice zdecydowali się na kontynuację leczenia w Warszawskim Centrum Zdrowia Dziecka, gdzie
dziewczynka ma podawane różne eksperymentalne chemie.

Pomimo agresywnego leczenia nie udało się osiągnąć całkowitej remisji
choroby.
Nadal utrzymują się zmiany nowotworowe w kościach.

Jedyną szansą dla Nikolki jest terapia przeciwciałami anty-GD2,
która jest wykonywana w klinikach zagranicznych.

Leczenia podejmuje się klinika w Greisfald, koszt leczenia to 

143 400,oo euro !

Rodzice dziewczynki apeluja :

"MAMY KOSZTORYS PRZEPROWADZENIA TERAPII PRZECIWCIAŁAMI ANTY-GD2 W GREIFSWALD.W CHWILI OBECNEJ NIKOLKA KONTYNUUJE LECZENIE W POLSCE.PO UKOŃCZENIU CAŁEGO LECZENIA JEST SZANSA NA PRZEPROWADZENIE TERAPII ANTYGD2. NA SUBKONCIE NIKOLKI ZNAJDUJE SIĘ KWOTA 33 304,00 zł TAK WIĘC WIELKA PROŚBA!!!

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------------------------------

Ważne linki :

konto Nikolki na FB

blog Nikolki

Pokoik na Forum Fundacji "LUDZIE SERCA"

Nikolka na siepomaga


 

Wesołych Świąt

 

Niech czas wielkanocny utrzyma nasze marzenia w mocy

i wszystkie życzenia okazały się do spełnienia,

i aby nie zabrakło nam wzajemnej życzliwości,

abyśmy przez życie kroczyli w ludzkiej godności

i niech symbol boskiego odrodzenia był i będzie dla nas celem do spełnienia.

Wesołych świąt!

 


 


 

Walka o życie Dominika

Dominik Młynkowiak choruje na ciężki nowotwór NEUROBLASTOMA, jest po dwóch ciężkich operacjach: trepanacji czaszki, usunięcia guza śródpiersia, chemioterapii, radioterapii i autoprzeszczepie szpiku kostnego. 

Lekarze nie dawali mu wielkich szans na przeżycie, jednak chłopiec nie załamał się.

W marcu 2012 roku wykryto ponowną wznowę choroby nowotworowej.

Tym razem rak zaatakował chłopca ze zdwojoną siłą. 

Dostał chemię, która wycisza atak wznowy i przygotowuje go do intensywnego leczenia. Jedyną szansą na uratowanie Dominika jest przeszczep szpiku kostnego. Znaleziono już „genetycznego bliźniaka” dla chłopca. 19 grudnia 2012 chłopiec „narodził się na nowo”.

Niestety, w październiku 2013 badanie MIBG wykazało progresję w kościach,  stwierdzono DRUGĄ WZNOWĘ. Rokowania są złe, rodzice usłyszeli od lekarzy: "my zrobiliśmy wszystko co mogliśmy, zastosowaliśmy wszystko, co dostępne w onkologii. Możemy zastosować chemię, która wyciszy chorobę, może znów dojść do remisji, ale nie wyleczymy go, możemy mu tylko przedłużyć życie, ale o ile nie wiemy"

Jednak pojawiła się szansa.

Wyjazd do Niemiec, do Kliniki w Greifswald, gdzie prowadzony jest projekt leczenia dzieci z Neuroblastomą wysokiego ryzyka (eksperymentalna metoda przeciwciał monoklonalnych anty-GD2). To leczenie tzw. choroby resztkowej, które zmniejsza prawdopodobieństwo nawrotu choroby.

Całkowity koszt terapii na dzień dzisiejszy wynosi 143.400 euro.

To w tej chwili jedyna szansa dla dziecka. Niestety koszt terapii jest tak ogromny, że sami nie jesteśmy w stanie temu podołać - mówi mama Dominika. Sami nie posiadamy nic co można by było spieniężyć, nie posiadamy także zdolności kredytowej. Możemy tylko liczyć na pomoc ludzi dobrej woli.

Za okazaną dobroć i pomoc Dominikowi SERDECZNIE DZIĘKUJEMY!


Chłopiec jest podopiecznym fundacji:

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http://dominik-mlynkowiak.blogspot.com/


 

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