Witamy na stronie Fundacji "LUDZIE SERCA"

Nowości

Zuzia Pokora

Zuzia urodziła się 23 marca 2012 r. W połowie maja zaczął ją boleć brzuszek. Zaczęła być markotna, popłakiwała. Pani doktor po zbadaniu Zuzi stwierdziła, że to nic groźnego - że trzeba odstawić słodycze, zmienić dietę i pić więcej wody. Po dwóch dniach stan Zuzi się nie polepszył. W szpitalu zrobiono USG, na którym wypatrzono złóg w jelicie. A to było coś o wiele gorszego... Guz miał 11 cm i zajął nadnercze. Rozpoznano neuroblastomę - groźny nowotwór dziecięcy, IV stopień zaawansowania...nie ma wyższego. Dodatkowo, wystąpiły już przerzuty do kości i szpiku. Aby Zuzia mogła pojechać za kilka miesięcy na leczenie we Włoszech, potrzeba 40 tysięcy euro. Walka z nowotworem wymagała od rodziców Zuzi nadludzkiej siły w patrzeniu na cierpienie dziecka, jedynej córeczki, i pokonywanie strachu przed tym, że mogą ją stracić. Teraz doszedł strach o to, że nie zdobędą pieniędzy na ostatni etap leczenia neuroblastomy. Jedyna nadzieja w dobrych ludziach, którzy pomogą zebrać potrzebną kwotę. Jedyna nadzieja w nas, w Tobie, który czytasz historię małej Zuzi.

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Verwendungszweck: 24651 - Pokora Zuzanna – darowizna na pomoc i ochronę zdrowia (dt. Pokora
Zuzanna – Spende für Hilfe und Gesundheitsschutz)


 Pokoik Zuzi na Forum Fundacji "LUDZIE SERCA"

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Oliwier Frydryszak potrzebuje pomocy !

Poznajcie naszego synka Oliwierka urodzonego 27.01.2007 r. Przez 3,5 roku był okazem zdrowia, naszą największą radością i szczęściem. W sierpniu 2010 r. stał się nagle apatyczny, zaczął utykać na nóżkę, wybudzał się z płaczem w nocy. Lekarze nie wiedzieli, co się dzieje z naszym synkiem, Oliwierek z dnia na dzień gasł w oczach. W końcu w październiku 2010 r. Oliwierek w ciężkim stanie trafił na oddział onkologii bydgoskiego szpitala im. Dr. Antoniego Jurasza, gdzie przyszło mu stoczyć trudną i niebezpieczną walkę o życie. Nasz przeciwnik to NEUROBLASTOMA – straszny i podstępny nowotwór złośliwy. Oliwierek przeszedł intensywną chemioterapię, operację usunięcia guza, autoprzeszczep, radioterapię i leczenie podtrzymujące. Mimo to choroba odpuściła tylko na 2 lata.

W lutym tego roku stwierdzono wznowę, walka zaczęła się od początku. Oliwierek dostaje chemię, ale komórki nowotworowe, które przetrwały w jego ciele są silne i oporne na leczenie. Mimo to nie tracimy nadziei, nasz synek już raz pokazał jaki jest silny, wierzymy, że i tym razem zwycięży!

Mamy nadzieję, że nowotwór się wycofa i pojawi się szansa na terapię antyGD2, niedostępną w Polsce, koszt
to średnio 150 tys. euro. Kwota ogromna, ale dobroć ludzi jest jeszcze większa, sami nigdy nie pozostawaliśmy obojętni na apele chorych dzieci, teraz to my musimy prosić  Państwa o pomoc.

Prosimy pomóżcie nam zawalczyć, bo cena jest najwyższa – ŻYCIE naszego synka.

- Rodzice -

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Dzień Dziecka

 Z okazji Dnia Dziecka, życzymy Wam kochane dzieciaki

samego zdrowia i szczęścia !

Kiedy dziecko śpiewa –
śpiewa cały świat.
Cały świat piosenką jest,
śpiewa kot i śpiewa pies,
ptak na niebie, wiatr na drzewie,
świerszcz na łące…
Nawet kiedy pada deszcz,
to ten deszczyk śpiewa też,
że po deszczu, że po deszczu
będzie słońce.

Kiedy dziecko tańczy – tańczy cały świat.
Z rudym kundlem czarny kot,
drzewa z niebem, z ziemią płot,
ptak z obłokiem, wiatr z motylem,
świerszcz na łące…
Cały świat ma tyle lat,
ile dzieci mają lat,
te dzieciaki, co do tańca 
wzięły słońce.

Kiedy dziecko płacze –
płacze cały świat. 
Kot ma oczy pełne łez,
na podwórku płacze pies,
wiatr w kominie, mysz pod miotłą,
świerszcz na łące.
O, jak słono od tych łez,
nawet cukier słony jest,
o, jak ciemno, o jak zimno –
gdzie jest słońce? 

Dajcie dzieciom słońce, żeby łez nie było,
Dajcie dzieciom słońce, dajcie dzieciom miłość.
Dajcie dzieciom słońce, całe słońce z nieba,
Żeby mogły tańczyć, mogły śpiewać.

Wanda Chotomska


 

Szansa na życie...

Nikola ma dopiero 6 lat a już dużą część swojego życia spędziła
w szpitalu, prawie 4 lata walczy o życie z nowotworem złośliwym Neuroblastoma IV stopnia z przerzutami do szpiku i kości!!!



Po 8 miesiącach spokoju, radości z odzyskanego zdrowia,
kiedy Nikola miała iść do przedszkola, nastąpiła wznowa!
Rak zaatakował szpik kostny i kości.

Ciężkie cykle chemioterapii nie przyniosły rezultatu, niewielka poprawa pojawiła się po kolejnych dwóch, jednak lekarze nie dawali zbytnich szans, więc rodzice zdecydowali się na kontynuację leczenia w Warszawskim Centrum Zdrowia Dziecka, gdzie
dziewczynka ma podawane różne eksperymentalne chemie.

Pomimo agresywnego leczenia nie udało się osiągnąć całkowitej remisji
choroby.
Nadal utrzymują się zmiany nowotworowe w kościach.

Jedyną szansą dla Nikolki jest terapia przeciwciałami anty-GD2,
która jest wykonywana w klinikach zagranicznych.

Leczenia podejmuje się klinika w Greisfald, koszt leczenia to 

143 400,oo euro !

Rodzice dziewczynki apeluja :

"MAMY KOSZTORYS PRZEPROWADZENIA TERAPII PRZECIWCIAŁAMI ANTY-GD2 W GREIFSWALD.W CHWILI OBECNEJ NIKOLKA KONTYNUUJE LECZENIE W POLSCE.PO UKOŃCZENIU CAŁEGO LECZENIA JEST SZANSA NA PRZEPROWADZENIE TERAPII ANTYGD2. NA SUBKONCIE NIKOLKI ZNAJDUJE SIĘ KWOTA 33 304,00 zł TAK WIĘC WIELKA PROŚBA!!!

BARDZO PROSIMY WSZYSTKICH O POMOC.

BEZ PAŃSTWA POMOCY NIE BĘDZIEMY MIEĆ TEJ SZANSY BY SKORZYSTAĆ.TO DLA NAS BARDZO WAŻNE!!!"

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------------------------------

Ważne linki :

konto Nikolki na FB

blog Nikolki

Pokoik na Forum Fundacji "LUDZIE SERCA"

Nikolka na siepomaga


 

Wesołych Świąt

 

Niech czas wielkanocny utrzyma nasze marzenia w mocy

i wszystkie życzenia okazały się do spełnienia,

i aby nie zabrakło nam wzajemnej życzliwości,

abyśmy przez życie kroczyli w ludzkiej godności

i niech symbol boskiego odrodzenia był i będzie dla nas celem do spełnienia.

Wesołych świąt!

 


 


 

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